Sunday, October 18, 2020
Charity | Sometimes it is about more than you, and Karma is real
Wednesday, October 7, 2020
CHANGE | A POWERFUL 6 LETTER WORD
This post is probably the one I have spent the most thinking about and writing. So hopefully you will enjoy it as much as I did pondering and transcribing it. And in my typical fashion I am confident what I want to say and what I say will miss a point in my mind. What I want to express is that this journey has forever changed me in more than just a physical way. I am come out of the other side a better person overall and have a fresh new perspective on life.
#2 - Just as we are the only ones who can prevent forest fires, we are the only ones who can control our future.
#4 - Take time to enjoy life, be in the NOW and don't dwell on the past. Get off the train at the next stop from time to time. Then get back on the train.
#5 - You won't always win, and you won't always loose. Stay in the game!
#6 - Be a better you !
#8 - Someone, somewhere has it worse than you. And in all situations you're still someone, somebody loves.
This weekend I listened to a friend of mine talk about Change and what that meant in life. There are over 100 people who read this and I don't know who all they are and I am not sure I know each of you. But some of you will know of the friend of have referenced and have the same level of love and respect for her as I do. She and her husband opened my eyes to the concept of who we really are as people. I still hear them in my mind asking the question "Who are You?" It's more than just our name or where we are from. The question is like an onion, many layers. Go back to the post "Here I Am" and you can learn more about what that question means. And when we have hours to sit and discuss we can unpack each of those into deeper layers.
But I want to focus on Change. If nothing else the last 90 days of my life have focused and revolved around that word. Just as a potter works with clay, or a blacksmith with iron, or a poet with words, it is all the same. In school we learn about the Law of Conservation of Mass, which teaches us that Matter cannot be created or destroyed. It simply just changes from one form to the next.
I have Changed through this journey and have a greater appreciate for the NOW, for Friendships, Family, and Self Care. I am a better me as a result. I have chosen to not let this be a negative experience for me, but just a part of my life's journey.
The Change I have experienced has been multifactorial and life altering. I have experienced emotional pain and growth. I have experienced Physical Change in several forms. I wont complain about the 12 pounds I have lost, I sure hope someone else picks up that Matter because I am happy to see it leave. I lost my hair, which will come back in a new style in the near future. I have changed my overall life expectancy. But most importantly this journey has change who I am. I won't unpack it all here, but I do hope to provoke thought for each of you on really thinking about the the question "Who are You?".I have kept humor in the front of this journey. I have always used humor to soften the blow or lighten the load where I could. I mean Laughter is the best Medicine and if you can't laugh at yourself who can? Too often I worry that we let life or our environment answer the question for us. And that is okay if that is what makes you happy, but it is never good if you left your environment dictate who you will become. Good or bad, right or wrong we are still the only ones who get to decide who and what we will be tomorrow. We can not be a victim of our situation.
My friend used the analogy of the game Shoots and Ladders for life and that sometimes we land on a space and are sent back to the beginning. As kids this action was associated with defeat or the potential loss of the game. Now from a theoretical and philosophical opinion there are Winners and Losers in life. Not everyone gets a trophy, and life is not always fair. If every patient is a COVID rule out, No Patient is a COVID rule out. If you disagree that is certainly fine, but for me I find that you can't always win and when you loose you only work harder next time and you will eventually win. But this topic is its own ball of wax.
I have chosen to view this experience with more of a sports reference. #FOULBALL. If you are not familiar with the reference I defer to google for your learning opportunity. So in life sometimes we step up to the plate and life throws us a the perfect pitch and we hit a home run, sometimes we strike out and have to wait for our next turn. From time to time life throws us a curveball and it is a swing and a miss, but on that rate occasion you swing, make contact and its a #FOULBALL.
With a #FOULBALL you get another chance, you get to stand back at the plate and you get to swing again. You didn't strike out, you didn't get on base, you simply get to go again. For me this experience has been more than the curveball that life pitched me, or lefty trying to kill me. It has been the opportunity to evaluate "Who I Am"!
Since I still have no idea the 100+ people who tune in to read to my random thoughts or laugh and cry with me I feel I have to give you a little more background on some of my personality traits.
First of all my Grandmother always told me 3 things growing up and still to this day she reminds me.
#2 Focus on your Education and then focus on the rest of life. Education is the priority. I think she witnessed on several occasions how focusing on life or the Jones's kept people from finishing their education. Keep in mind that I am the second person in my family tree on her side that graduated college and the first to have a Master degree. And on Dad's side I took first place in both categories.
#3 It is not about what you make, it is about what you spend.
Now I also did not grow up in a family that had a lot of money and I quickly understood how the best train our of that was the Education train. So when she said to focus on my education I heard that train pulling into the station to take me to financial freedom. I always wanted my family to have a better financial foundation than we did. I am not saying that I am rich, most people think I am. But I just continue to remember to pay myself each paycheck, spend less than I make, and always remember the rain in coming. I love Dave Ramsey and I am a firm believer that if you can't pay cash for it, chances are you don't need it.
Life is made up of more than your Career, your Salary, your Car, the House you live in, your social standing and for goodness sake the number of Instagram Followers you have. Now I am not a social media addict and I don't even know how many "Facebook Friends", "Insta Followers" or "Twitter Birds" I have, because I have NEVER put any faith in any of that. If anything I believe that Social Media has done nothing for our Social well being and has caused way more harm than any benefit to our lives.
While we're on that topic, I can remember watching Wall-E years and years ago and thinking, folks this is as about as close as you can get to what our lives are becoming. Folks take just a moment and really think about this picture from the movie.
And if you have not watched this movie, Disney Plus is free from about anyone, take the time and watch it. Then think, "Who are You?"
Sunday, October 4, 2020
The Good Ol' Days
The weekend has not been terrible. The fatigue continues to be the second largest struggle that I have. I did finally sleep about 6 hours last night and that was pure joy.
Many whom have called and texted have asked about the hair, my response is that it is 90% gone. I will be getting what is left shaved off. They all ask how I look and I just laugh and say that at this point people are going to start sending me 19 cents a day, and that the ringing in my ears has been replaced by a Sarah McLachlan loop.
A true friend of mine who I will call Lieutenant aka Tiny T, to protect the innocent, called on his way to work and we chatted. He and I worked together for years and I really do miss working with him. He is smart and more importantly I love his sense of humor. Being in Emergency Services is not always rainbows and unicorns. We are faced with a lot of negative energy and often spend the worst moments of someone's life with them and their families. This wears on your person, on your soul. Having people like T with you always made the job a little better. Not just because it was nice to work with another competent person, but because he showed compassion and courage and when it was all said and done would laugh with you and sometimes at you. People, it is not about being insensitive or having a lack of compassion and not that we don't care about those we take care of or the job we perform. But it can be tough, rough and full of all kinds of bad stuff. We COPE, so that we can be the best we can be when patients and families need us to be. Humor is how he and I cope with this job. So as you continue reading you HAVE TO remember that this is how we cope. If you don't like witty or dark humor turn the channel now.
I tried to find a picture of us working together but the only picture I had in my phone was this one. He worked his way up to Lieutenant, and spent more time in the office as a result.
I think some of my most memorable moments with him were early morning or late night. In my most memorable moment with him we were both tired, it had been a busy 24 hours, it was dark outside, we were almost done without shift and we were on our way to one of those calls those of us in EMS are all too familiar with. The ones were an ambulance is clearly not needed and in this situation I am not too sure that a Medical Professional was even indicated. But those of you not familiar with the process, you dial 911 and ask for an Ambulance, the 911 dispatcher is like the Genie in Aladdin. Your wish is their command. And yes people with multiple modes of immediate transportation will wait 30 minutes on an ambulance to drive them 10 minutes to the hospital.
And let me tell you there are a lot of people who call 911 for a lot of reasons that really did not need to. So here Lieutenant aka Tiny T and I go off to save the day once again. And for those who do not know me, when I am tired a different form of me comes out. I lose what little patience I had and I can get crazy.
So the insomnia for the past week has been a real hay day. Good thing I have been quarantined for this week.
I had fully intended on sharing with you some of the stories from our shifts together, but have refrained after writing them out. I don't think they will pass the politically correct test and in the United States of the Offended someone would get upset. So to summarize there was a lack of sleep, coffee, house numbers a lot of neon children with flags. He will remember and is laughing as he reads this.
I have been in EMS since August of 2002. Since then I have experienced a lot in my life. There have been few dull moments. I have been scared, laughed, and even cried.
- My first shift ever scared me to death and I said I was never going back. Yet I have still showed up for 18+ years.
- I have see more of the human body with my naked eye that most will in their lifetime.
- I have been covered in more bodily fluids than I care to have been.
- It has been a bad call when the vomit hits the back of the doors when your partner slams on the brakes.
- All bleeding stop, eventually.
- Always put something white on the red and hold tight.
- A microwave will create warm IV Fluids.
- Macgyver has nothing on my resourcefulness. I can do a lot with nothing to pull from.
- I learned that Tire Pressure is the most important part of the truck check off.
- You can't fix stupid, and if you look around the room they are in good company.
- People will stick anything into just about anything and then create the most elaborate story when things go wrong.
- Sometimes not laughing is the hardest thing I do.
- You can't make this stuff up, and we have all written a book about it. And you ain't going to believe this starts or ends every shift.
- I have gained a family that is like no other.
- I have made friends and enemies.
- I have had to get a new duty belt on more than one occasion. And I don't foresee me getting back into my first uniform.
- I have helped people come into this world and unfortunately been with more as they have exited.
- I have learned to view death in a different light than most will ever understand.
- I have made people laugh, mostly at me, but sometimes with me.
- I have cried with a family members.
- I have been a social worker, a resource giver and an ear to listen.
- I have lost friends.
- I have met the evil in the world head on.
- I have pulled a "Reid".
- I have learned that anyone born in the 2000's CAN'T read a map and are directionally challenged.
- I have accepted that my best on most days is not good enough, that we are not the ones in control. When your number is up, your number is up.
- Success is not completely defined by achieving the desired outcome. Success is knowing you did your best.
- I have learned to be a better person, a better me. This job has forever made me who I am today.
- I became the "Old Timer" and talked about the "Good Days" on shift at 30 years old.
- I have learned that I do it for the love of my community, for the people. It is not for the fame and I promise you it is not for the money.
Thursday, October 1, 2020
Check up from the Neck Up !!
I think that today has been one of the harder emotional days. I continue to have fatigue and insomnia combined with the hearing issues. But today I noticed my hair started falling out around 10 am. I have been so upset about it. I know it is just hair and it really isn't that big of a deal, but it is a big deal.
I think that I mentioned in the past that I use to tell Terah it was just hair and not to worry about it. No one cares. Well I can hear here in my head going "It is just hair nick a lause". It is just hair. Nick A Lause is how Siri says my name and so her family loves to call me that and I love that they do.
I know I mentioned in an earlier post that I think the biggest reason it is hard to lose your hair is not the loss of the hair itself, but what it means or symbolizes. It makes it all official in a sense. So that is what I wanna talk about tonight. I will get you a picture once I build up the courage to take one.
It is more than hair. Now when I look at the man in the mirror I see a cancer patient. I see someone who has been through a lot in the last month and someone who can no longer hide behind the smile. But let's be honest, who do we really see when we look in the mirror? I can physically see this man that look weathered and worn. But that is just the physician characteristics that I see. We really see much more than that.
So I decided it is time for a check up from the neck up. Who do we really see?? What do we hope to see? Are we looking at the person we want to be in life? Have we met our goals? Have you loved yourself enough? Do we love who we see? Are we the best person we can be? It is more than just the physical appearance it is the person as a whole.
So who do I see? Well I see a Cancer Warrior, a Fighter, a Successful Professional, a Paramedic, someone to love. I see all the things I have been through and all the things that are yet to come. I see me and I like what I see. I might not be attractive and look like a sick person, but I am much more than that guy. He is just occupying my mirror for the month. He will get the eviction notice soon enough. But for now he is me, he is the best me and he is the proud me. He did it!
So the next time you look in the mirror think about who you really see and if you don't like them, change them!! They will follow your lead!!
Wednesday, September 30, 2020
Getting back to normal
Tomorrow is October the 1st and here we go. Tomorrow is the first day back at work officially. I have been working off and on as I have felt like it, but it is time to get back to more normal life. I feel generally well. I still don't taste much more than salt, the hearing is still bad and I get tired. But other than that I feel great.
The taste will come back soon they say. I think the most frustrating part is that my brain is craving a particular food and I want that food. But when I eat it, it taste nothing like what I am craving. Think of a big piece of cake and all you want is that cake. And when you bite into it you taste nothing, not a thing. So my brain is still give me the cake, but I eat the cake and there is no satisfaction. So you could feed me about anything right now and I would never know if it was good or bad. Soon enough I will be able to taste that cake and my brain will be satisfied. It also makes COVID screening fun, yes I have lost my sense of taste, but we all know it is the Chemo not the Miss Rona. I just say no given it is linked clearly to another issue.
I am afraid that my hair is on its way out. For the past two days my body hair has been disappearing. Can't say that I am too upset about that. I also have two smooth spots on my face, SO SMOOTH. The hair on my chiny chin chin is gone gone gone. Still holding strong on the top of my head, not even thinning out.
I was talking with a friend today who asked the question was it as bad as you thought it was going to be? Well to be honest, no it was not. I prepared for much worse. That is not to downplay the not so fun experience, but overall it was not as bad as I had feared.
Monday I got dinner delivered by Carmen. She brought lasagna, salad and her mom made homemade yeast rolls. Carmen first made lasagna for me 10 years ago probably. I think we have known each other that long, and every since I have never found anyone that makes it as good as she does. So needless to say I was excited about getting it. The texture was amazing and I have not forgotten how good it is so my brain had to feel in the blanks for my lack of taste.
I also got a gift box from my Floyd Anesthesia Team. I will have to do something nice for all of them. They do such a good job there and again great people to work with.
My dentist office sent me a nice box from Joshua Tree. It included a succulent and a candle. I would have never expected this much from them and they were great! So a Plug for Smile Solutions Dental in Harrisburg.
I can say that I think the biggest part of my success has been the mental positivity and humor I have surrounded myself with. Also Brea, Tina and Susanne made each day manageable and were so supportive and patient. So my advice for the next person who enters this journey is to have a positive attitude and take it one day at a time. You eat the elephant one bite at a time and you will take this journey one day and one step at a time. Do not rush it, it will all happen as it is suppose to happen. Look to what you can control and remember YOU GOT THIS!
Monday, September 28, 2020
Day 15 | Final Dose - Hitting the Home Run
Sunday, September 27, 2020
Day 14 | The Final Countdown
Good Morning. We are almost there. Tomorrow will be the big day. My last Chemo Treatment. I never knew what I would be going through going into this journey. Anyone who knows me will tell you that I am a planner and my level of spontaneity is low. I have always been one to calculate risk and analyze and think through all outcomes, both intended and unintended. When you get a Cancer Diagnosis life becomes about the odds, the likelihood of it all. Everything is about survival rate, mortality rate at 5 years, effectiveness of treatment. And yes even the unintended consequences of treatment. So you literally start playing the odds. It is hard to wrap your mind around converting your life span to intended and unintended outcomes. But as I have said before, we all have odds that affect our life span.
My amazing co-worker Mollie brought me a basket of goodness yesterday. I continue to be so appreciative of everyone and their efforts. Allowing other to serve and show their support is so rewarding. I plan to return the favor and pay it forward every opportunity that I get.
Did you know that your ZIP code is a direct factor in your life span. Crazy right? Several years ago I took a year long class on Community Paramedicine. I actually have a certificate as a Community Paramedic and am eligible to take a Certification Exam. Bucket list item at this point, but I learned a lot about Social Disparities of Health and what really affect our overall health. Little know fact but the Healthcare System, your doctors, hospitals, pharmacy etc., well that is on 20% of the overall equation.
Here is a great infographic on the topic:
I did not create that and the source is listed above. But take a look at the top right, 50% can be traced back to your ZIP CODE!!!!!!I spend a good 9 months really studying this and how to help navigate and manage it. It will blow your mind.
So how do we do Rowan County???? Well here is a copy from the Salisbury Post Article on the matter on July 15th of 2020.
So lets be honest, you can move less than 15 minutes in ANY direction and your changes of living longer Increase. So statistically speaking, live in Rowan County and you will die younger than if you live in ANY of our surrounding counties. Did that blow your mind? As a point of reference we were 59th before 2020, so were going in the wrong direction. You can learn more from the Health Department. Here is a link for you who want to see the math: https://www.rowancountync.gov/DocumentCenter/View/22199/2019-Rowan-County-SOTCH-Report-PDF
But folks this is just DATA, nothing more than data. You will learn that we will never be a stealler number because we have a lot of social service resources in our communities, which naturally attract those needing the services. Field of Dreams moment here, if you build it they will come. Being a Paramedic you will quickly learn the large number of individuals who move to the area just for access to the VA and their services. People move from other states, just to have access to the VA. Build a big VA in Concord and you will see that 9th place drastically drop.
I say all this to just highlight that while data and statistics are significant in our lives, our choices and our actions drive that data. A part of going through this experience for me has been learning that sometimes we have to look past the data and just move forward.
Going into this I wanted to know everything that I could to be prepared, to know what to experience. I wanted the checklist that said Day 1 this will happen, Day 2 this will start. A play by play of what my body would experience so I could be prepared. I talked to other patients who had gone through this exact same diagnosis and treatment, and got different stories. I did research and tried to learn as much as I could about the drugs. I asked every question possible, and my journey has been different that anyone else's.
Now, I recommend that you always talk to other survivors, active patients and healthcare professionals. You need to understand what the potential will be. But you have to also understand that when they tell you "everyone is different", it is 100% true. Your journey will be different! But the outcomes will be the same. This whole process has been manageable. I prepared for the worst, hoped for the best and then took it day by day.
And here we are Day 14, the day before we do it for the last time. Tomorrow's treatment is an easy one and I will only continue to get better from here. I slept great last night, I feel like a human being today and feel ready to take on tomorrow.
Through this whole process I have not had the opportunity for close contact with others given our current pandemic. So tomorrow I am hoping that I can get as many people as possible to come and join me for a picture as I finish my last Chemo Treatment! I'll do my best to Social Distant and I won't be passing out hugs but I think it would be awesome to have everyone who has been cheering for me at a distance there to share this moment with me. This is one such occasion that I personally have planned to never do again. So if you read this and your free please come tomorrow (September 28th) at 1230 to the Wallace Cancer Institute a department of Novant Rowan and join me!







