Charity | Sometimes it is about more than you, and Karma is real

Throughout this journey I have been amazed at the overwhelming love and support that I have received.  I also have been blow away by all the nice things that people have done for me.  I never imagined that I would be in this situation and I have been more than appreciative for the Charity others have shown.  I think I will remember that more than the treatment itself.  

Charity comes in all different forms.  And Charity can mean a variable of meanings.  I define it as the pure love of Christ.  It is doing the right thing, being kind to one another.  Helping someone cross the street, all things that a good Southern Lady would teach you.  It can mean different things to different people.  For most it is the act of giving.  I have never viewed Charity as someone of greater means giving to someone with lesser means.  I choose not to put it in the reference of a "Charity Case".   Rather I choose to frame it as being kind to one another.  At the end of the day we are all the same, we are all people just doing our best.  At some point in everyone's life you will be in need of Charity.  

For those looking for an update on my progress, I overall have felt 90% the past week.  And maybe 90% is my new 100%?  I have an appetite but don't want to eat, eating makes me feel sick if I eat too much, so I am still figuring that out.  I have gained some of my weight back, which in the end is the right thing.  I will lose it in a more healthy way soon enough.  I did get to visit with the ENT (Ear, Nose and Throat) Doctor this week.  He removed a mole on my head that liked to bleed through most of Chemo.  While I was there I brought up the ringing in my ears and how annoying that has been.  How it causes me anxiety and is such a frustration.  He said unfortunately that is here to stay.  So I guess one of my battle wounds will be the continuous sound I hear.  Prayers and fingers crossed it goes away.  I think it has been one reason I don't sleep well anymore honestly.  He did recommend a white noise machine when I sleep, I gave it a try and I think it helped.  I need a couple nights to see how it goes.  

I also continue to struggle with staying focused.  When I am focused on something I have not noticed any problems.  But when I try to focus on several things, I will forget bits and pieces.  This is sometimes called "Chemo Brain" and I think it is getting better and better.  I have to remind myself that the effects of Chemo last well past the treatment and the cells have to rebuild themselves.  It has not even been a month yet and some of my research suggest as long as 40 days.  

Back to the topic of Charity.  As I have pondered on how I can show more Charity in my life, the concept of paying it forward continues to come to mind.  I would say as recent as 5 years ago I was a more Charitable person.  I was more active in service to other people, more active with non-profits and more involved in my community.  The only thing that has really changed is life.  I am still the same person and believe the same way I have always believed on the topic of Charity or service to others.  I just got busy and have not sought for or been given the same opportunities for service.  That needs to change for sure.  I still feel that I do show Charity for others but I am missing that service component.  The dedication and giving of my time to help others.  

So I am trying to pay forward all the kindness that has been shown me.  I am working on a couple "Boxes of Courage".  When I started Chemo on my first day I got a small cooler with a variety of items and a note from another cancer patient.  It was not much and it was fairly simple, but the meaning was powerful.  So I am going to take that and pay it forward by creating these boxes.  I plan to fill 5 gift boxes with items that I found to be helpful for me during my treatment and write a note of encouragement for the recipient.  I will give these boxes to the Cancer Institute to pass along to the next patients who start their journey.   You are all welcome to participate with me.  I welcome cards and notes of encouragement or items for the boxes.  I am going to put the basic things that are not too specific to the type of cancer and keep them general.  So mints, carmels, fragrance free lotion, hand sanitizer, thank you cards, puzzles, color books, playing cards etc.  I am also going to try to find some reusable cups that have the measurements on the side to help with tracking fluid intakes and reusable lids and straws.  And if I can find it a nice set of reusable plasticware.  

We all want the world to be a better place, and that starts with Charity.  While I am going to pay it forward more, I encourage you to do the same.  I have always loved to do a random act of kindness.  I don't want the recognition for it, and I don't want the praise. But I do believe that Karma exist in the world.  I think that doing good is rewarded in this life or the next.  I believe that if we are good people, generally good will surround us.  I joked with a friend of mine when I was telling her about getting cancer, that at some point in life I must not have helped an old lady cross the street.  And that Karma was giving me a kick in the balls for that.  While I don't support the idea that if you are only ever doing good that bad won't come you way. But I do suggest that when bad knocks on the door, there will be enough good around you to get you through it.  So the old adage that "what goes around comes around" holds some truth.  

Showing Charity does not have to be a grand gesture or one of significant monetary value or prestige.  Charity is made up of all the small and simple things we do.  Imagine if we were all a little nicer to one another.  Or showed a little more love to our neighbors.  Our world is divided more now than ever in my lifetime and were only going to get through this by showing a little more Charity.  That is on all parties to do.  If everyone just did the right thing, we would come out ahead on the other end.  But our inability to communicate and to listen has escalated our world to a new level.  

I was able to show Charity in two forms this week.  First my friend Amanda invited me over to make Halloween Decorations for her family to give to people.  She planned to simply just place them on others doorsteps.  It was simple, fun and we used all recycled materials.  Left over lumber, paint, ribbons etc.  It was really fun and enjoyable and I hope that those who got them felt a little more loved.  I brought home a couple.  

It was also Prime Day this week, and of course I bought a bunch of crap that I didn't really need.  But things I could find useful.  And when they are at a good deal you tend to buy them.  I am by no means the person who created this idea but I did put a basket of treats for the delivery team.  Speaking of why can Amazon not just deliver all my items on the same day ?  At one point I had three Amazon trucks in front of my house.  Some choose to take something and others did not.  Half of them were not even paying attention.  I even had one Amazon Driver stop on his way back up my street and get more.  Some realized I had a camera and others did not so that was a good laugh.  Pumpkin was a part of craft day with Amanda as well.  

I have always enjoyed Maya Angelou's work when it came to poetry.  It was so simple and real.  Her words had meaning and provoked thought.  She was very intelligent, she did move to North Carolina so that in itself says a lot.  I love North Carolina for those who have not figured that out.  One of her most famous quotes is about Charity.  I have included it here for those who may have never heard it or may not realize she is the author.  

 

So I want to ask that each of you take the next day, week or month and to work on showing others more Charity.  That includes strangers or people you don't know.  Were not as social as we were because Miss. Rona has put us in the corner, but we all have a neighbor, we all have that one person we know needs a little more support right now.  They might not even need anything, but you need the opportunity.  When was the last time you did service for someone else?  Do you remember?  Can you remember how it made you feel?  Maybe it is just picking up litter on the side of the road, or helping someone rake their leaves.  It could be pulling their trash can to the road for pickup.  Just love people a little more this week.  Smile behind your mask, call a co-worker you have not seen since March and ask them how they are doing.  If you want to take it a step further call that local non-profit and ask how you can help.  Buy the overpriced coffee at Starbucks for the person behind you in the drive through.  The Holidays are upon us and it is the time for giving and showing Charity.  I for one can't wait, the election should be over, and regardless of that 2020 will be over and hopefully 2021 has better Karma.  

Charity starts with you.   So ask yourself, how will you change the world today? 

CHANGE | A POWERFUL 6 LETTER WORD

This post is probably the one I have spent the most thinking about and writing.  So hopefully you will enjoy it as much as I did pondering and transcribing it.  And in my typical fashion I am confident what I want to say and what I say will miss a point in my mind. What I want to express is that this journey has forever changed me in more than just a physical way.  I am come out of the other side a better person overall and have a fresh new perspective on life.  

#1 - Sometimes bad things lead to good outcomes, it's all about perspective 
#2 - Just as we are the only ones who can prevent forest fires, we are the only ones who can control our future. 

#3 - Those who came before us figured out this life thing, take their advice it comes from a good place.
#4 - Take time to enjoy life, be in the NOW and don't dwell on the past.  Get off the train at the next stop from time to time.  Then get back on the train. 
#5 - You won't always win, and you won't always loose. Stay in the game!
#6 - Be a better you !

#7 - Put the phone down, visit with someone, have a conversation.  Or at least use the numbers and not the letters on the phone.
#8 - Someone, somewhere has it worse than you.  And in all situations you're still someone, somebody loves. 

This weekend I listened to a friend of mine talk about Change and what that meant in life.  There are over 100 people who read this and I don't know who all they are and I am not sure I know each of you.  But some of you will know of the friend of have referenced and have the same level of love and respect for her as I do.  She and her husband opened my eyes to the concept of who we really are as people.  I still hear them in my mind asking the question "Who are You?"  It's more than just our name or where we are from.  The question is like an onion, many layers.  Go back to the post "Here I Am" and you can learn more about what that question means.  And when we have hours to sit and discuss we can unpack each of those into deeper layers.  

But I want to focus on Change.  If nothing else the last 90 days of my life have focused and revolved around that word.  Just as a potter works with clay, or a blacksmith with iron, or a poet with words, it is all the same.  In school we learn about the Law of Conservation of Mass, which teaches us that Matter cannot be created or destroyed.  It simply just changes from one form to the next.  

I have Changed through this journey and have a greater appreciate for the NOW, for Friendships, Family, and Self Care.  I am a better me as a result.  I have chosen to not let this be a negative experience for me, but just a part of my life's journey.  

The Change I have experienced has been multifactorial and life altering.  I have experienced emotional pain and growth.  I have experienced Physical Change in several forms.  I wont complain about the 12 pounds I have lost, I sure hope someone else picks up that Matter because I am happy to see it leave.  I lost my hair, which will come back in a new style in the near future.  I have changed my overall life expectancy.  But most importantly this journey has change who I am.  I won't unpack it all here, but I do hope to provoke thought for each of you on really thinking about the the question "Who are You?".  

I have kept humor in the front of this journey.  I have always used humor to soften the blow or lighten the load where I could.  I mean Laughter is the best Medicine and if you can't laugh at yourself who can?  Too often I worry that we let life or our environment answer the question for us.  And that is okay if that is what makes you happy, but it is never good if you left your environment dictate who you will become.  Good or bad, right or wrong we are still the only ones who get to decide who and what we will be tomorrow.  We can not be a victim of our situation.  

My friend used the analogy of the game Shoots and Ladders for life and that sometimes we land on a space and are sent back to the beginning.  As kids this action was associated with defeat or the potential loss of the game.  Now from a theoretical and philosophical opinion there are Winners and Losers in life.  Not everyone gets a trophy, and life is not always fair.  If every patient is a COVID rule out, No Patient is a COVID rule out.  If you disagree that is certainly fine, but for me I find that you can't always win and when you loose you only work harder next time and you will eventually win.  But this topic is its own ball of wax. 

I have chosen to view this experience with more of a sports reference. #FOULBALL.  If you are not familiar with the reference I defer to google for your learning opportunity.  So in life sometimes we step up to the plate and life throws us a the perfect pitch and we hit a home run, sometimes we strike out and have to wait for our next turn.  From time to time life throws us a curveball and it is a swing and a miss, but on that rate occasion you swing, make contact and its a #FOULBALL.  

With a #FOULBALL you get another chance, you get to stand back at the plate and you get to swing again.  You didn't strike out, you didn't get on base, you simply get to go again.  For me this experience has been more than the curveball that life pitched me, or lefty trying to kill me.  It has been the opportunity to evaluate "Who I Am"! 

Since I still have no idea the 100+ people who tune in to read to my random thoughts or laugh and cry with me I feel I have to give you a little more background on some of my personality traits.  

First of all my Grandmother always told me 3 things growing up and still to this day she reminds me.

    #1 Always pay yourself.  Each paycheck you take a little bit and you pay yourself.  This becomes your rainy day fund and will help when you need it.  
    #2 Focus on your Education and then focus on the rest of life.  Education is the priority.  I think she witnessed on several occasions how focusing on life or the Jones's kept people from finishing their education.  Keep in mind that I am the second person in my family tree on her side that graduated college and the first to have a Master degree.  And on Dad's side I took first place in both categories.  
    #3 It is not about what you make, it is about what you spend.  

Now I also did not grow up in a family that had a lot of money and I quickly understood how the best train our of that was the Education train.  So when she said to focus on my education I heard that train pulling into the station to take me to financial freedom.  I always wanted my family to have a better financial foundation than we did.  I am not saying that I am rich, most people think I am.  But I just continue to remember to pay myself each paycheck, spend less than I make, and always remember the rain in coming.  I love Dave Ramsey and I am a firm believer that if you can't pay cash for it, chances are you don't need it.  

I share this to let you know that going down this path I stopped and reflected and concluded that I probably gave too much of my time to my work and not enough time to me.  I think that I got too focused on the next promotion or the next financial milestone to realize that I might have stayed on the train too long.  We have to get off at the next stop from time to time and then board the train to the next stop.   Folks, it is what it is and dwelling on the past for too long never gets you moving forward.  This post is about Change and what this experience has taught me.  And this is the biggest lesson that I think I have learned.  My perspective has changed and so my reality must also.  

Life is made up of more than your Career, your Salary, your Car, the House you live in, your social standing and for goodness sake the number of Instagram Followers you have.  Now I am not a social media addict and I don't even know how many "Facebook Friends", "Insta Followers" or "Twitter Birds" I have, because I have NEVER put any faith in any of that.  If anything I believe that Social Media has done nothing for our Social well being and has caused way more harm than any benefit to our lives.  

While we're on that topic, I can remember watching Wall-E years and years ago and thinking, folks this is as about as close as you can get to what our lives are becoming.   Folks take just a moment and really think about this picture from the movie.

And if you have not watched this movie, Disney Plus is free from about anyone, take the time and watch it.  Then think, "Who are You?"  

I also think I have spent a lot of my time focused on the future and where the train is going.  I worry that I have not spent enough time in the NOW, to appreciate my hard work and really just enjoy life.  I made life a series of patterns and steps.  And too one extent took life too serious.  Let me just say the train is going to the next station.  I like humor to cope, but what if I just enjoyed the here and now more?  We have to build the memories and the good days now, so in the future they were the "Good Ol' Days".  We have our whole lives ahead of us.  And the sad dark reality is that I have learned that the future looks a lot different between you and I.  We have no way of knowing how long this rollercoaster is, how big the pie is, or how much gas is left in the tank.  So I am going to start sharing my time with the Now and the Future.  There is a little less in my tank now and I have to enjoy it.  I am blessed that my Cancer diagnosis was not accompanied by a expiration date.  My war with this disease is not over but I have won this battle. 

I have also come to the reality that my friends are way more awesome than I thought they were.  You really never know who your real friends are till you need them.  So I have been amazed and how wonderful each of them have been.  I am going to be more Social, more engaged and more participatory in life.  And that does not involve a computer or mobile device.  It is verbal in person communication.  

I have always said I want to go here or I want to go there.  And I will create reasons why I can not go now and I will say next year, or next summer.  Well if 2020 didn't teach you about how quickly life can change, you might want to wake up and take a look outside.  The reality is this might be as good as it gets, so we have to learn to accept it and move on.  No need to live in fear or worry about the what ifs.  I can promise you if your not trick or treating this year, the what ifs will be and at some point they will knock on your door.  

I joined a support group for young people with cancer.  I will not be going back to the support group, I did not find it to be emotionally what I needed at this point in my life.  I am a firm believer that support groups and a good mental health professional make for a rounded person.  But you got to find the right group and right professional.  This particular group ws for people under 40 who are actively going through a cancer journey.  I found out really quick that cancer is far worse than what I have experienced.  The majority of those in the group have a terminal diagnosis.  That was way more than my emotional health could handle and my brain was screaming abort abort.  But what I did learn is that life is that someone else always has it worse.  

Each of us are going to be thrown a curve ball when we step up to the plate.  It is part of the strategy and it is just life.  And if you swing and hit a #FOULBALL, remember that you get another chance.  My curveball was Cancer.  And I hit a #FOULBALL, and I am getting another chance, it is not the third strike for me in this inning.  Your curveball could be the loss of a spouse, parent or child.  It could be a traumatic injury, the loss of your job, a stroke, heart attack or just about anything that doesn't go according to plan.  It could be the terrible "C" word that sucks.  But it's not the pitch that gets us, it is how we choose to respond to the pitch.  Some of you will hit it out of the park, others will be a swing and a miss.  You get to choose, you are in control and You Got This!  

I can't tell you if I am in the bottom of the 3rd or the Top of the 7th.  But I am still in the game and as long as I am in the game, I am going to step up to the plate wait for life to pitch the ball and swing.  Just like you I am not going to hit the ball every time and I might strike out, but until the game is over, we get another chance.   

The Good Ol' Days

 The weekend has not been terrible.  The fatigue continues to be the second largest struggle that I have.  I did finally sleep about 6 hours last night and that was pure joy.  

Many whom have called and texted have asked about the hair, my response is that it is 90% gone.  I will be getting what is left shaved off.  They all ask how I look and I just laugh and say that at this point people are going to start sending me 19 cents a day, and that the ringing in my ears has been replaced by a Sarah McLachlan loop.  

A true friend of mine who I will call Lieutenant aka Tiny T, to protect the innocent, called on his way to work and we chatted.  He and I worked together for years and I really do miss working with him.  He is smart and more importantly I love his sense of humor.  Being in Emergency Services is not always rainbows and unicorns.  We are faced with a lot of negative energy and often spend the worst moments of someone's life with them and their families.  This wears on your person, on your soul.  Having people like T with you always made the job a little better.  Not just because it was nice to work with another competent person, but because he showed compassion and courage and when it was all said and done would laugh with you and sometimes at you.  People, it is not about being insensitive or having a lack of compassion and not that we don't care about those we take care of or the job we perform.  But it can be tough, rough and full of all kinds of bad stuff.  We COPE, so that we can be the best we can be when patients and families need us to be.  Humor is how he and I cope with this job.  So as you continue reading you HAVE TO remember that this is how we cope.  If you don't like witty or dark humor turn the channel now.  

I tried to find a picture of us working together but the only picture I had in my phone was this one.  He worked his way up to Lieutenant, and spent more time in the office as a result.  

I think some of my most memorable moments with him were early morning or late night.  In my most memorable moment with him we were both tired, it had been a busy 24 hours, it was dark outside, we were almost done without shift and we were on our way to one of those calls those of us in EMS are all too familiar with.  The ones were an ambulance is clearly not needed and in this situation I am not too sure that a Medical Professional was even indicated.  But those of you not familiar with the process, you dial 911 and ask for an Ambulance, the 911 dispatcher is like the Genie in Aladdin.  Your wish is their command.  And yes people with multiple modes of immediate transportation will wait 30 minutes on an ambulance to drive them 10 minutes to the hospital.  

And let me tell you there are a lot of people who call 911 for a lot of reasons that really did not need to.  So here Lieutenant aka Tiny T and I go off to save the day once again.  And for those who do not know me, when I am tired a different form of me comes out.  I lose what little patience I had and I can get crazy.  

So the insomnia for the past week has been a real hay day.  Good thing I have been quarantined for this week.  

I had fully intended on sharing with you some of the stories from our shifts together, but have refrained after writing them out.  I don't think they will pass the politically correct test and in the United States of the Offended someone would get upset.  So to summarize there was a lack of sleep, coffee, house numbers a lot of neon children with flags.  He will remember and is laughing as he reads this. 

I have been in EMS since August of 2002.  Since then I have experienced a lot in my life.  There have been few dull moments.  I have been scared, laughed, and even cried.  

• My first shift ever scared me to death and I said I was never going back.  Yet I have still showed up for 18+ years. 
• I have see more of the human body with my naked eye that most will in their lifetime. 
• I have been covered in more bodily fluids than I care to have been. 
• It has been a bad call when the vomit hits the back of the doors when your partner slams on the brakes. 
• All bleeding stop, eventually. 
• Always put something white on the red and hold tight. 
• A microwave will create warm IV Fluids. 
• Macgyver has nothing on my resourcefulness.  I can do a lot with nothing to pull from. 
• I learned that Tire Pressure is the most important part of the truck check off. 
• You can't fix stupid, and if you look around the room they are in good company.  
• People will stick anything into just about anything and then create the most elaborate story when things go wrong.  
• Sometimes not laughing is the hardest thing I do. 
• You can't make this stuff up, and we have all written a book about it. And you ain't going to believe this starts or ends every shift. 
• I have gained a family that is like no other. 
• I have made friends and enemies.
• I have had to get a new duty belt on more than one occasion. And I don't foresee me getting back into my first uniform. 
• I have helped people come into this world and unfortunately been with more as they have exited.   
• I have learned to view death in a different light than most will ever understand. 
• I have made people laugh, mostly at me, but sometimes with me.  
• I have cried with a family members. 
• I have been a social worker, a resource giver and an ear to listen.  
• I have lost friends. 
• I have met the evil in the world head on. 
• I have pulled a "Reid".
• I have learned that anyone born in the 2000's CAN'T read a map and are directionally challenged. 
• I have accepted that my best on most days is not good enough, that we are not the ones in control. When your number is up, your number is up. 
• Success is not completely defined by achieving the desired outcome.  Success is knowing you did your best.  
• I have learned to be a better person, a better me.  This job has forever made me who I am today.  
• I became the "Old Timer" and talked about the "Good Days" on shift at 30 years old.  
• I have learned that I do it for the love of my community, for the people.  It is not for the fame and I promise you it is not for the money.  

Overall my life has been what I have allowed it to be. What I have wanted it to be.  We really only ever have control over ourselves, and I am a firm believe that if you want something in life you have to work hard for it and the sky's the limit.  You can be what you want to be and go where you want to go.  You are your only limiting factor.  We can say that our environments or socioeconomic variables limit us, but they only challenge us to work harder and to be better.  No one ever said it was easy.  Attitude and perception lead the way, so focus on the positive and do it.   And thanks Chris for all the good and not so good memories and for giving me the ability to Laugh Out Loud at random.   

 

Check up from the Neck Up !!

I think that today has been one of the harder emotional days.  I continue to have fatigue and insomnia combined with the hearing issues.  But today I noticed my hair started falling out around 10 am.  I have been so upset about it.  I know it is just hair and it really isn't that big of a deal, but it is a big deal.  

I think that I mentioned in the past that I use to tell Terah it was just hair and not to worry about it.   No one cares.  Well I can hear here in my head going "It is just hair nick a lause".  It is just hair.  Nick A Lause is how Siri says my name and so her family loves to call me that and I love that they do.  

I know I mentioned in an earlier post that I think the biggest reason it is hard to lose your hair is not the loss of the hair itself, but what it means or symbolizes.  It makes it all official in a sense.  So that is what I wanna talk about tonight.  I will get you a picture once I build up the courage to take one.  

It is more than hair.  Now when I look at the man in the mirror I see a cancer patient.  I see someone who has been through a lot in the last month and someone who can no longer hide behind the smile.  But let's be honest, who do we really see when we look in the mirror?  I can physically see this man that look weathered and worn.  But that is just the physician characteristics that I see.  We really see much more than that.  

So I decided it is time for a check up from the neck up.  Who do we really see??  What do we hope to see?  Are we looking at the person we want to be in life?  Have we met our goals?  Have you loved yourself enough?  Do we love who we see?  Are we the best person we can be?  It is more than just the physical appearance it is the person as a whole.  

So who do I see?  Well I see a Cancer Warrior, a Fighter, a Successful Professional, a Paramedic, someone to love.  I see all the things I have been through and all the things that are yet to come.  I see me and I like what I see.  I might not be attractive and look like a sick person, but I am much more than that guy.  He is just occupying my mirror for the month.  He will get the eviction notice soon enough.  But for now he is me, he is the best me and he is the proud me.  He did it!  

So the next time you look in the mirror think about who you really see and if you don't like them, change them!!  They will follow your lead!!