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Thursday, September 24, 2020

Day 11 | SAY WHAT??!?!?!?!?!

Well today is the first day I am starting to feel more like a real person.  I actually think I ate a decent meal today TWICE!  So that is good news.  I joked today when I got to the Cancer Institute that I was in my Skinny Jeans.  Well folks the truth is I have not weight this much in 10 years or more!  I am only 237 pounds.  

My weight has been a yo yo the past several months.  At the beginning of the year I was almost 260 pounds.  It was a like BAMB in your face moment.  Luckily I have a great neighbor Sherry who I see walking every evening and I said it is time i join her.  So between walking with her and the My Fitness Pal App, I was able to drop down to 245. 

When it was discovered that Lefty was misbehaving I was 250.  The day of eviction I was down to 242.  Walking into Chemo on the first day I was right at 250.  That Wednesday I was 256? and today I was 237.  So it has been crazy to watch my body go up and down.  I would say that my baseline weight was 250 for this time period so overall I have lost 13 pounds, which is not too bad.  I imagine that it will come back up quickly given I ate today.  This week I have lived off applesauce cups and peaches mostly.  I eat a little bit a dinner, potatoes, mac and cheese or something simple, but the bulk of my means come in a 3 oz plastic cup.  

Nonetheless, today was a dressing change for Tommy, the PICC Line.  My last one.  He and I will be parting ways in 4 days.  I hope he has not gotten too comfortable.  I will say that if you ever get a PICC Line overall after the first day it starts feeling better and most days I do not even remember that I have it.  The sock that holds the ports to my arm remind me more than the line itself.  I have found that sleeping with it is not as bad as when we started and overall it is not a big deal.  I will be sure to get a good Pic of my PICC before we part ways.  So if you ever are considering or have to determine if it is worth it.  I will tell you YES, it is very much worth it.  I have not had to get stuck with a needle since I got it, I have not had to worry about an IV a Day.  My nurses love it and so do I.  I am worried about getting it taken out, but they assure me it is nothing and all will be fine.  Just unknown.  

The past several days the fatigue has been real.  I get up and think I feel great, I slept great and I am back.  That is at 0700.  At 0730 it takes all the energy I have to get back to the bed.  The brick wall that you hit is hard and it comes quickly.  I just lay around mostly, just lay there, play the Switch my coworkers got me.  Watch a lot of food TV shows, and just stare at the walls.  I don't really feel that I need to sleep I just don't have energy.  My concentration and mental capacity are crap still.  Still GI issues, mostly lower.  

I do however want to say that the most frustrating thing for me currently the ringing in my ears.  It gets louder and more intense everyday.  Everything sounds differently.  Some things are really loud and others I can not hear.  The TV is a challenge and conversations are interesting.  I can not concentrate and then I can't hear so its a regular comical skit these days.  I might have said it before, but here we go again.  The Platinum is a neurotoxin which has affected my hearing.  It is a normal and common issue, and one that at some point will correct itself.  I have talked to others who say it takes months and even now years later they still have some days where the ringing comes back.  So this is just part of the price I will pay.  I look forward to my hearing being normal again.  

The next physical change I will experience will be the hair loss so bring it on.   

Gift shoutouts!!  
Co-workers Nina, Sarah, Casey and Kimberly sent me some ice cream, boost and pudding.  
Co-worker Jen sent me some socks and a blanket 
The Cannon Ballers Staff sent me a signed baseball with encouragement and a T-Shirt 
Co-worker Mollie sent me some peach cups and a Switch game Minecraft.  


2 comments:

  1. Nick, I'm sure I'm not alone saying that you are your best cheerleader and that your attitude is always ALWAYS upbeat. Though you've lost weight, you've not lost your sense of humor and positive outlook. It's why you have so many people who admire you. Get well and don't be afraid to ask for anything.

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