I got the opportunity today to talk to someone else in the area who has been through this. It was an okay conversation, not what I wanted to hear but it was what it was. He had a similar almost exact diagnosis as I did. His was 7 years ago. He opted to have the surgery as a preventative measure, which no one has really recommended for me. He also did not have positive tumor markers and a clean CT, but when they did the surgery they found the cancer had already spread. It is a fairly aggressive surgery in my book and really do not want to do it unless it is necessary. Anyway he said the Chemo was rough and he would rather go through the surgery again that do the chemo. NOT what I wanted to hear but everyone is different. What I have learned is how rare it is. The Urological Oncologist Navigator said it is hard to find others to talk to because it really doesn't happen that much. Go figure.
So what is the plan? I will go Monday - Friday of next week for 5 - 8 hours per day. I will be getting three total drugs. I then go back the following 2 Mondays for just the bleomycin.
BEP is used to treat testicular cancer and a rare type of ovarian cancer called a germ cell tumour. It is best to read this information with our general information about chemotherapy and the type of cancer you have.
Your doctor will talk to you about this treatment and its possible side effects before you agree (consent) to have treatment.
BEP comes from the initials of the drugs used:
- B – bleomycin
- E – etoposide
- P – cisplatin (platinum)
I am ready to get er done!!!!!!!!!!!!!!
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